I haven’t blogged in a while, but it’s been a whirlwind week. Those who have been following Aurora’s story will know that our plan was to wait for count recovery to harvest T-Cells for CAR-T therapy, but due to the aggressive nature of her disease, Aurora’s counts never come up and so we had no…
Month: October 2020
Loose Ends
On Wednesday Aurora was admitted back to The Marsden where they planned to take new samples of her bone marrow to gather a new baseline. GOSH were due their inspection on Friday, and her consultant wanted to hold out for the opportunity of CAR-T which everyone currently considers her best hope. Unfortunately, it was unsuccessful….
Back to the Beginning again.
I’ve been trying really hard to pull myself out of this negative wormhole I seem to be living in, but I can’t. I feel angry, frustrated and scared for my little girl and what all of this means for her. People keep saying stay strong and think positive, but I was doing all of that…
Lymphoma Limbo: CAR-T Cell
My gut wasn’t going last night which I took as a good sign. I always know when something bad is coming, because my stomach does flips and I have to run to the toilet to be sick now. We’d already been booked in to meet with Aurora’s consultant to sign consent for her next course…